[et_pb_section fb_built=”1″ _builder_version=”4.27.0″ _module_preset=”default” background_image=”https:\/\/deepdsstudy.global\/wp-content\/uploads\/2024\/09\/hero_2-1.png” background_size=”contain” background_position=”top_center” custom_padding=”20px||||false|false” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.0″ _module_preset=”default” custom_margin=”3.5vw||0px||false|false” custom_margin_tablet=”0vw||0px||false|false” custom_margin_phone=”0vw||0px||false|false” custom_margin_last_edited=”on|phone” custom_padding=”0px||0px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/deepdsstudy.global\/wp-content\/uploads\/2024\/09\/turtle.png” title_text=”turtle” align=”right” _builder_version=”4.27.0″ _module_preset=”default” width=”30%” width_tablet=”30%” width_phone=”40%” width_last_edited=”on|phone” max_width=”240px” custom_margin=”||0px||false|false” custom_padding=”0px||0px||false|false” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row custom_padding_last_edited=”on|tablet” _builder_version=”4.27.0″ _module_preset=”default” custom_margin_tablet=”” custom_margin_phone=”” custom_margin_last_edited=”on|phone” custom_padding=”||||false|false” custom_padding_tablet=”||0px||false|false” custom_padding_phone=”20px||0px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_heading title=”COS\u2019\u00c8 LA SINDROME DI DRAVET?” _builder_version=”4.27.0″ _module_preset=”default” title_font=”|700|||||||” title_text_align=”center” title_text_color=”#44A083″ title_font_size=”32px” custom_margin=”||10px||false|false” custom_margin_tablet=”||10px||false|false” custom_margin_phone=”||||false|false” custom_margin_last_edited=”on|phone” custom_padding=”||||false|false” title_font_size_tablet=”32px” title_font_size_phone=”” title_font_size_last_edited=”on|phone” global_colors_info=”{}”][\/et_pb_heading][et_pb_divider color=”#44A083″ divider_weight=”1.5px” _builder_version=”4.27.0″ _module_preset=”default” max_width=”560px” module_alignment=”center” custom_margin=”10px||0px||false|false” global_colors_info=”{}”][\/et_pb_divider][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_2,1_2″ _builder_version=”4.27.0″ _module_preset=”default” custom_margin=”||||false|false” custom_padding=”||||false|false” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.27.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.5″ _module_preset=”default” header_3_font=”|700|||||||” global_colors_info=”{}”]<\/p>\n
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Mentre la ricerca continua a far luce sulla malattia, cresce la comunit\u00e0 di caregiver e persone che affrontano sfide simili. Sono in fase di studio opzioni terapeutiche per migliorare la qualit\u00e0 della vita sia dei bambini sia degli adulti con sindrome di Dravet. <\/p>\n
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[\/et_pb_text][et_pb_button button_url=”\/it-it\/#eligibility” button_text=”Contribuire alla ricerca sulla sindrome di Dravet” button_alignment=”center” _builder_version=”4.27.0″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#FFFFFF” button_bg_color=”#043673″ button_border_width=”0px” button_border_radius=”30px” button_font=”–et_global_heading_font|700|||||||” button_use_icon=”off” custom_margin=”20px||20px||false|false” custom_padding=”10px|45px|10px|45px|true|true” global_colors_info=”{}” button_bg_color__hover=”#44A083″ button_bg_color__hover_enabled=”on|hover” button_icon_color__hover=”#043673″ button_icon_color__hover_enabled=”on|hover”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ next_background_color=”#ffffff” _builder_version=”4.27.0″ _module_preset=”default” background_color=”#213A70″ custom_padding=”54px||120px||false|false” bottom_divider_style=”wave” bottom_divider_height=”50px” global_colors_info=”{}”][et_pb_row custom_padding_last_edited=”on|phone” _builder_version=”4.27.0″ _module_preset=”default” custom_padding_tablet=”” custom_padding_phone=”” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_heading title=”INFORMAZIONI SUL FARMACO SPERIMENTALE” _builder_version=”4.27.0″ _module_preset=”default” title_level=”h2″ title_font=”|700|||||||” title_text_align=”center” title_text_color=”#A9D5C3″ title_font_size=”32px” custom_margin=”||10px||false|false” title_font_size_tablet=”32px” title_font_size_phone=”26px” title_font_size_last_edited=”on|tablet” global_colors_info=”{}”][\/et_pb_heading][et_pb_divider color=”#A9D5C3″ divider_weight=”1.5px” _builder_version=”4.27.0″ _module_preset=”default” max_width=”670px” module_alignment=”center” custom_margin=”10px||20px||false|false” global_colors_info=”{}”][\/et_pb_divider][et_pb_text _builder_version=”4.27.5″ _module_preset=”default” header_2_font=”|700|||||||” header_2_text_color=”#FFFFFF” header_3_font=”|700|||||||” header_3_text_color=”#44A083″ text_orientation=”center” custom_margin=”||0px||false|false” global_colors_info=”{}”]<\/p>\n
Sta inoltre esaminando misure relative al sonno, alla gravit\u00e0 e alla qualit\u00e0 della vita.<\/h2>\n
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Il farmaco sperimentale precedentemente valutato in 239 persone, comprese alcune con sindrome di Dravet, attiva uno specifico recettore neuronale. Ci\u00f2 cambia il comportamento delle cellule e contribuisce a ridurre le crisi convulsive in alcune persone. <\/p>\n
Il termine \u201cfarmaco in studio\u201d si riferir\u00e0 al farmaco sperimentale o al placebo ed entrambe le soluzioni avranno lo stesso aspetto e lo stesso sapore. Il farmaco in studio verr\u00e0 fornito sotto forma di liquido somministrato per via orale o attraverso un sondino. <\/p>\n
[\/et_pb_text][et_pb_button button_url=”\/it-it\/#eligibility” button_text=”Chi pu\u00f2 partecipare?” button_alignment=”left” button_alignment_tablet=”center” button_alignment_phone=”center” button_alignment_last_edited=”on|tablet” _builder_version=”4.27.4″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#FFFFFF” button_bg_color=”#44A083″ button_border_width=”5px” button_border_radius=”30px” button_font=”–et_global_heading_font|700|||||||” button_use_icon=”off” custom_margin=”40px||||false|false” custom_padding=”10px|45px|10px|45px|true|true” global_colors_info=”{}” button_text_color__hover=”#00475B” button_text_color__hover_enabled=”on|desktop” button_bg_color__hover=”#A9D5C3″ button_bg_color__hover_enabled=”on|hover” button_icon_color__hover=”#F4F8FA” button_icon_color__hover_enabled=”on|hover” custom_padding__hover=”|45px|||true|false” custom_padding__hover_enabled=”on|hover” button_border_color__hover_enabled=”on|hover” button_border_color__hover=”#FFFFFF”][\/et_pb_button][\/et_pb_column][et_pb_column type=”2_5″ _builder_version=”4.27.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/deepdsstudy.global\/wp-content\/uploads\/2024\/09\/dolphin_check.png” title_text=”dolphin_check” align=”center” _builder_version=”4.27.0″ _module_preset=”default” max_width_tablet=”280px” max_width_phone=”280px” max_width_last_edited=”on|tablet” module_alignment=”center” max_height=”310px” custom_margin=”||||false|false” custom_margin_tablet=”30px||||false|false” custom_margin_phone=”30px||||false|false” custom_margin_last_edited=”on|tablet” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ next_background_color=”#F4F8FA” _builder_version=”4.27.0″ _module_preset=”default” bottom_divider_style=”wave2″ bottom_divider_height=”50px” bottom_divider_flip=”horizontal” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/deepdsstudy.global\/wp-content\/uploads\/2024\/08\/cropped-DEEp_SEA-302_Icon-RGB.png” title_text=”cropped-DEEp_SEA-302_Icon-RGB.png” _builder_version=”4.27.0″ _module_preset=”default” max_width=”100px” module_alignment=”center” global_colors_info=”{}”][\/et_pb_image][et_pb_heading title=”PERCH\u00c9 PARTECIPARE?” _builder_version=”4.27.0″ _module_preset=”default” title_font=”|700||on|||||” title_text_align=”center” custom_margin=”||0px||false|false” global_colors_info=”{}”][\/et_pb_heading][et_pb_heading title=”Partecipare a uno studio clinico \u00e8 una decisione importante, ma \u00e8 anche un\u2019opportunit\u00e0 per prendere parte a un\u2019iniziativa finalizzata a far progredire il trattamento per la sindrome di Dravet.” _builder_version=”4.27.4″ _module_preset=”default” title_level=”h2″ title_font=”|700|||||||” title_text_align=”center” title_text_color=”#44A083″ title_font_size=”26px” custom_margin=”||10px||false|false” title_font_size_tablet=”26px” title_font_size_phone=”22px” title_font_size_last_edited=”on|phone” global_colors_info=”{}”][\/et_pb_heading][et_pb_divider color=”#44A083″ divider_weight=”1.5px” _builder_version=”4.27.0″ _module_preset=”default” max_width=”90%” module_alignment=”center” custom_margin=”10px||20px||false|false” global_colors_info=”{}”][\/et_pb_divider][et_pb_text _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n
Partecipando alla ricerca clinica, la persona a Lei cara svolger\u00e0 un ruolo attivo nella definizione delle opzioni terapeutiche per la sindrome di Dravet e contribuir\u00e0 al progresso della medicina per le generazioni attuali e future.<\/p>\n
Non esistono benefici comprovati associati alla partecipazione a uno studio clinico. Tuttavia, la partecipazione allo studio DEEp SEA pu\u00f2 ridurre la frequenza delle crisi convulsive nei partecipanti assegnati al gruppo di trattamento con il farmaco in studio. Inoltre, durante lo studio e gli esami facoltativi, i partecipanti potranno contare su una continua gestione e valutazione medica finalizzata a identificare le mutazioni associate alla sindrome di Dravet nei partecipanti. <\/p>\n
La decisione di partecipare \u00e8 personale e dipende interamente da Lei e dalla persona a Lei cara. \u00c8 essenziale sentirsi a proprio agio ed essere informati prima di partecipare a uno studio clinico. La invitiamo a rivolgere eventuali domande al Suo operatore sanitario. <\/p>\n
[\/et_pb_text][et_pb_button button_url=”\/it-it\/#eligibility” button_text=”Scopra le modalit\u00e0 di partecipazione della persona a Lei cara” button_alignment=”center” _builder_version=”4.27.0″ _module_preset=”default” custom_button=”on” button_text_size=”18px” button_text_color=”#FFFFFF” button_bg_color=”#043673″ button_border_width=”0px” button_border_radius=”30px” button_font=”–et_global_heading_font|700|||||||” button_use_icon=”off” custom_margin=”||40px||false|false” custom_padding=”10px|45px|10px|45px|true|true” global_colors_info=”{}” button_bg_color__hover=”#44A083″ button_bg_color__hover_enabled=”on|hover” button_icon_color__hover=”#043673″ button_icon_color__hover_enabled=”on|hover”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"
La sindrome di Dravet \u00e8 una forma di epilessia genetica estremamente problematica che spesso insorge durante l\u2019infanzia, portando con s\u00e9 il carico di crisi convulsive prolungate e altri sintomi correlati. Per le persone colpite e le rispettive famiglie, comprendere i sintomi della sindrome di Dravet pu\u00f2 essere un processo emotivo. La Dravet Syndrome Foundation descrive […]<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"class_list":["post-330","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/deepdsstudy.global\/it-it\/wp-json\/wp\/v2\/pages\/330","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/deepdsstudy.global\/it-it\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/deepdsstudy.global\/it-it\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/deepdsstudy.global\/it-it\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/deepdsstudy.global\/it-it\/wp-json\/wp\/v2\/comments?post=330"}],"version-history":[{"count":0,"href":"https:\/\/deepdsstudy.global\/it-it\/wp-json\/wp\/v2\/pages\/330\/revisions"}],"wp:attachment":[{"href":"https:\/\/deepdsstudy.global\/it-it\/wp-json\/wp\/v2\/media?parent=330"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}